New Perspectives in Pediatric Liver Transplantation
Sherrie Logan is the Founder of Ashley’s Angels, a 3rd party fundraising initiative supporting The Hospital for Sick Children (SickKids Hospital) transplant program, which she formed following her daughter’s liver transplant in August 2009. She oversees and leads the organization’s strategies and overall direction. Recently, Sherrie received a Grand Partner Award recognition from SickKids Foundation for raising over $1 million in support of pediatric transplant education, innovation, and research.
Since the fall of 2019, Sherrie has been a Starzl Network External Advisory Panel member. Starzl is a network of pediatric transplant institutions committed to continuous improvement until every child can achieve a long and healthy life. The External Advisory Panel assesses Network sustainability and provides consultation as needed. The Panel provides insight for improvement and offers expertise to advance Starzl’s mission and vision.
In 2015, Sherrie was recruited by the Society of Pediatric Liver Transplantation steering community to lead an International grassroots Patient and Family Engagement Committee. Achievements from this group have resulted in establishing a network of International pediatric liver transplant centers, the production of creditable and accessible transplant education tools, constructive clinical care feedback, the prioritization of patient-driven research and raising awareness for organ and tissue donation.
Since 2014, Sherrie has also played an active patient partner and charitable role with the Canadian Donation and Transplantation Research Program in providing transplant patient/caregiver perspective as co-lead of theme 5, restoring long-term health post-transplant, and the opportunity to fund transplant research.
Sherrie has completed a Specialized Bachelor of Science Honours in Kinesiology and Health Science Degree at York University. She is currently enrolled in her final year of a Masters in Public Health (Health Promotion) graduate program at the University of Alberta. She has also completed a Bachelor of Arts degree from Wilfrid Laurier University and a diploma in Midwifery from Ryerson University.
Finally, Sherrie has participated as a co-principal investigator and co-investigator in numerous health-related research projects focused on improving the quality and quantity of life years post solid organ transplantation. Sherrie has demonstrated her commitment, passion, and leadership to improve, evaluate and advance pediatric liver transplant patient care, health promotion and healthcare systems.
Characteristics and processes for writing lay summaries of healthcare evidence: A co-created scoping review and consultation exercise
Sherrie Logan1,4, Sareh Zarshenas1,2, Heather Colquhoun1,2, JoAnne Mosel2, Hardeep Singh1, Adora Chui3, Samantha Seaton1,2, Sandra Moroz2, Tayaba Khan1.
1Occupational Science and Occupational Therapy Department, University of Toronto, Toronto, ON, Canada; 2Strategy for Patient-Oriented Research-Evidence Alliance, Toronto, ON, Canada; 3Institute of Health Policy, Management and Evaluation, University of Toronto, Toronto, ON, Canada; 4Patient, Family and Engaged Partners (PFEP), Pediatric Liver Transplantation Patients and Families f, Society of Pediatric Liver Transplantation, Montreal, QC, Canada
Introduction and objectives: Lay summaries (LSs) of scientific evidence are critical to sharing research with non-specialist audiences. This scoping review aimed to 1) Describe the available LS writing resources by their features, suggested characteristics, content, and nature of patient partner (PP) involvement; 2) Summarize suggested processes for writing LSs; and 3) Conduct a consultation exercise (CE) to contextualize the review findings with the perspectives of PPs.
Methods: This scoping review was co-created with four PPs and conducted using the Joanna Briggs Institute methodological guidance. A search of peer-reviewed and grey literature was conducted with the inclusion of any resource that described recommended LS characteristics and/or processes for writing a LS. Three CE sessions with nine additional PP participants were conducted to discuss perspectives on the results (characteristics and writing processes) of the scoping review.
Results: Of the identified 80 resources, 79 (99%) described characteristics of a LS and 10 (13%) described processes for writing a LS. The most frequently suggested characteristic included avoiding jargon (78% of resources). A continuum of key steps in creating a LS was acknowledged and participants emphasized important process considerations.
Conclusion: PPs are seldom included in the development of LS guidance, nor are the target, despite being a key audience for LSs. Our CE indicated that PPs have different perspectives compared to literature findings on what constitutes an optimal LS and how best to write one, suggesting a need for increasing the inclusion of PPs in developing best practices for writing LSs.
SPOR Evidence Alliance.
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